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Report on Love Your Ride workshop

Our February workshop went well – small but fruitful! Unfortunately, I forgot to take photos, but we had a lot of fun!

People liked the maintenance kits and zines, and we all shared stories of our chairs breaking, repair techniques, watching online videos for tips and tricks, and of course, dealing with insurance and trying to source parts for older chairs.

Several new volunteers came to help out, some with bike or car mechanic skills and others just generally handy. Mostly that meant, working one on one with workshop participants to figure out if they could use particular custom tools or parts. Our volunteers (Maureen, Mike, Luis Felipe, Jake, and Olga) were also super helpful in finding service manuals online to email them to device owners!

And, Marisol showed off the Assistive Tech lending library while Vince shared his experiences as a wheelchair repair tech over the years.

One of our William had some amazing sites and resources and knowledge to give us. I’m hoping he will become a GOAT volunteer!

https://brokenwheelchairs.com, which has incredibly useful information about some of the most common powerchairs, like service manuals, sizes of attachment rails, and other great repair adjacent stuff. I am reaching out to the creator of that site to see if GOAT can be helpful to them !

White Raven Mobility, which has 3-D printed joystick and other small modifications available for sale at a fairly low cost – by a wheelchair user who is a maker and inventor!

Build My Wheelchair – A parts and battery shop, not cheap, but sometimes you can find a deal. And what they are really good for, is you can order parts through them, when manufacturers won’t sell direct to you.

MyATProgram – This is a program in several different states that functions as a lending library for assistive tech.

For our actual workshop we passed out the toolkits and zines, and then had a lot of extra tools and parts laid out across some tables for kit customization.

This was a great pilot event that helped me figure out what is workable in an hour and a half to two hours. For our next event, I will have a new version of the zine, and the workshop itself will have a bit more structure.

Rather than one two page spread to write down lots of different pieces of info about the device, I think we need to first frame what we are doing and why!

That means a quick round of simply listing
1. Things that have broken or worn out in the device in the past. NOT a long story – just a list.
2. Things that you wish you could modify about the device in the future. For example, stronger hooks for carrying things on the back of the seat, or a more accurate and informative battery level readout.
3. Who helps you, or might help you, with maintenance and DIY repairs? Who might learn with you and be supportive?

From there, I think we would be more ready to jump into gathering information about the specific device, and have some goals in mind.

We can aim our work at, becoming more prepared for the next time something breaks, or be able to prevent that breakage!

And, at following up later on the things that aren’t broken but that we want to change – like those stronger hook systems!

The other thing I found in our workshop is that, this subject is broad, deep, and powerful. We all as wheelchair users or assistive tech users have strong feelings about our relationship with our equipment. We depend on it like parts of our bodies. When stuff breaks and especially when we run into the enormous problems and limitations of insurance, Medicare, vendors who don’t respond, and so on — or even facing being without our critical devices for weeks or months — It can be a traumatic experience.

So, any wheelchair fixing workshop kind of tends towards story sharing , peer skill sharing, and I would say, a deepening of political awareness and solidarity. None of those stories are things that I want to fend off or interrupt. But, my thought is to make space for them towards the end of a workshop and follow it up with info on how to file complaints, how to use Right to Repair law, and other kinds of advocacy and activism we can use in those difficult situations!

The same thing is true to some extent of any kind of tech support. At least, with some of my old experience in IT, I felt it was so — my job was only partly “fixing computers” and was much more about listening to people, doing a kind of combination of therapy and pedagogy to try to get people to a place of empowerment rather than trauma and fear.

Meanwhile, I ahve great news I’ll talk more about soon, which is that we got some substantial donations! This means we can expand our toolkits and the range of tools we have available, and run more programs, as well as re-doing and expanding the Fix-It Zine.

Our Fix-It Zine in a more general form, version 2, will be available soon to buy or download & print free!

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DIY archive work

book cover in english and hindi: Upkaran, a manual of aids for the multiply handicapped

GOAT’s Archival team is cataloguing DIY assistive tech material – currently, many boxes of books and papers donated by Alexandra Enders. Many of the books we are going through and scanning are not available in any library and not findable in digital form online – they are unique, and we are so excited to preserve them for future generations, so they can learn, build, use, and invent based on these assistive tech designs!

The team adds each source to our LibraryThing profile, and adds metadata such as keyword tags. Have a look at our current catalog.

The material is then scanned and uploaded to GOAT’s account on the Internet Archive, freely available to anyone around the world to read.

As we go through the 20 or so donated boxes, we will be moving the source material when appropriate to the Prelinger Library in San Francisco, which has agree to host our physical copies that are unique, rare, or important. These hard copies to be accessible to the public, so that people can visit, browse, and read elements of this important collection in person.

Thanks to our Archiving team: Veronica, Karen, Milo, and Jack!

liz, karen, and veronica smiling in front of a box of papers, a scanner, and laptop

Book cover: Designing and Constructing Adaptive Equipment on your desktop. diagram of child lying on adaptive pillows, design of overcoat with adaptive fastenings

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Love Your Ride – wheelchair maintenance and repair workshop

GOAT is running another free workshop in San Francisco, at the Independent Living
Resource Center SF! In honor of Valentine’s Day we are calling it “Love Your Ride”. At this event we will test out our pilot Fix-It-Kits, which are small pouches of tools and materials, along with a pocket sized zine.

The zine has a workbook page to record useful information about your mobility device, and then goes through inspection, cleaning, checking vulnerable points like all bolts, screws, wheels, folding parts, and attachments. Collecting that info will help us construct a custom kit, with replacement bolts, tools for tightening bolts and screws, and so on.

a colorful zine and some tools coming out of a zippered pencil pouch

Free workshop to learn maintenance for your mobility gear
Wheelchairs, powerchairs, scooters, walkers, rollators, etc.

Time: Saturday, Feb. 22, 2:00pm – 4:00pm
Location: ILRCSF, 825 Howard Street – San Francisco

FREE TOOLKIT AND INSTRUCTION MANUAL

We will work with you to make a custom maintenance and emergency repair kit!
You will get to take home a small, portable bag with tools and materials customized for you.

There is also a workbook to fill out with information about your mobility device or devices.

We will look for service manuals and other information to give you as well!

Please register by emailing Brianna@ilrcsf.org with your name, phone number, and any particular access needs you have. Or you can call or text Vincent @ 415-609-2555 if you prefer that to email. We’d love to see you there!

A joint workshop by Grassroots Open Assistive Tech and ILRCSF
Liz Henry, liz@openassistivetech.org, https://openassistivetech.org
Vincent Lopez, vincent@ilrcsf.org, https://ilrcsf.org
Marisol Ferrante, marisol@ilrcsf.org, Nick Feldman Assistive Tech Lending Library

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Prototyping a free wheelchair repair kit and zine

I am working on a zine for GOAT “fix-it-kits”. The zine encourages people to maintain and be prepared for emergency repairs on their mobility devices. It’s a lot of fun, and I can’t wait to show the prototype to people for feedback before I make the first batch for our next workshop!

The zine has space for writing down the specifics of your device; a toolbag checklist; then tips on inspecting, cleaning wheelchairs and other gear, as well as checking all its fasteners and accessories. I wrap it up with some thoughts on Right-to-Repair and a list of local resources and communities.

The “Fix-it-Kit” is a sturdy vinyl zipper pouch with grommets that will be useful to attach the kit to the frame of a chair. It is fairly small and thin but not flat; it has space for mini tools.

small zipper bag with tools and a pocket sized zine visible inside

a couple of pages of a zine with an intro and table of contents

There aren’t really standards for wheelchair bolts, screws, and so on. So we can’t pick one basic set of tools to include in each bag. Instead, the “motherkit” messenger bag has an assortment of tools and parts, like hex keys and bolts in metric and standard sizes. These have to be individually picked out for a person and for their chair.

This motherkit will also have specific tools for manual chairs, like mini tire pumps and patches. The tiny pieces like stickers, rubber bands, washers and bolts will go into (donated) small metal tins (like Altoids tins) inside the pouch.

For the things we’re buying, I’ll be fundraising to support giving these free kits to any wheelchair user who comes to our repair, build, and hacking events!

I’ll have a list of specific tool donations we’re looking for, and will set up an Amazon wish list so people can donate new items to GOAT.

The most expensive part of this kit will likely be a small but decent quality crescent wrench, which I think is critical. Another expensive but great thing for the kit – mini rolls of gaffer or duct tape. And if people have dexterity or hand pain issues and need or want T-handle drivers for sockets, screws, and hex bolts, we want to be able to offer them.

I’ll be posting again soon with a full draft of the zine, and the parts list for the fix-it-kits.

Please donate to support our Fix it Kit and zine project!

What tools do you carry for your wheelchair, powerchair, or scooter maintenance or emergency repair? I would love to hear and to get suggestions for the zine or the fix-it-kits.

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Free Webinar: Power wheelchairs and Right-to-Repair law in California

MARK YOUR CALENDARS!
December 12
2:00-3:00 PM, Pacific Time

The CIL’s partners at the DONetwork are proud to put on this educational webinar explaining the ins and outs of the new Power Wheelchair Right to Repair law in California.

Please register here: https://tinyurl.com/DOnetworkSB1384

The DOnetwork will be producing a public education webinar for SB 1384, the “powered wheelchair right to repair” bill, sponsored by Sen. Dodd. This legislation becomes law on January 1, and it has impacts that will increase the ability for independent repair shops and individuals to access parts and equipment to make repairs on powered wheelchairs.

Here’s an overview of what will be covered:

  • What SB 1384 means for the community, and how it will be implemented in California?
  • How is right to repair working in other states?
  • What are the next steps for pushing this issue in California?
  • Invited panelists include State Senator Bill Dodd, Capitol Staff Ana Vazquez, a representative from NCART – the association for providers of power chairs and complex rehab technology, and a consumer.

    a whill model ci powerchair up on a jack with the front wheel removed

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    Your ideas are intriguing to me, and I wish to subscribe to your newsletter

    We now have a newsletter! It is called GOAT Notes, and has a cute little logo of a cartoon goat holding up a paper scroll, having taken a bite out of the paper.

    You can subscribe to the newsletter for free, but there is also an option to donate to support the newsletter, and our organization, via Stripe, when you sign up.

    I have not decided on newsletter frequency. There may be a cadence of once per month, but with shorter updates for announcements of new events. Or, I could aim for a short update roughly once per week. Either way, a frequency between weekly and monthly seems likely.

    You can also read, share, or link to the back archives of GOAT Notes, someday when we have more than one issue!

    a cute cartoon goat holding a paper scroll that says GOAT Notes. there is a bite out of the top of the scroll for extra cuteness

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